Santa Cruz Good Times

Tuesday
Sep 30th
Text size
  • Increase font size
  • Default font size
  • Decrease font size

Lymphedema

What is it? Patients with this frustrating disease speak out and offer help

Incoverlymphedema 2000, Stephanie Mungai received one of those pesky insect bites. Most people would just slap on some soothing balm and forget about it. But for Mungai, that was hardly the case. Within an hour her arm was red and puffed up to nearly an inch larger than its normal size. She had to rush to an emergency room.

Mungai soon learned that it was no ordinary insect bite. The doctors informed her that she had an infection in her lymph system, which was aggravated by the bite. “The infection comes from protein buildup in the lymph system and I was treated with antibiotics, sent home and suggested to go see a therapist,” Mungai says.

She did go see that therapist and soon found out that she had lymphedema, an uncomfortable illness that is often a byproduct of cancer treatment. A complicated, confusing and frustrating disease, in short, the visuals on it are that it typically swells extremities—at times, the trunk of the body—sometimes to severe degrees. Inflicted individuals go through much turmoil dealing with it and some of its treatments involve various types of massage, including some self-massage and in-patient treatments. They often have to wear constricting garments to control swelling. In addition, the condition can get worse at any time. And frankly, things never really get “better.” Once someone encounters lymphedema, it seems that it’s there to stay.

Finally, there’s one final lurking concern about lymphedema: You might not have it yet, but you may be in the 35th percentile that have gone through cancer treatments and are likely to get it.

Mungai was diagnosed with breast cancer in 1991 and underwent a lumpectomy. In addition, many of her lymph nodes were removed. And while she became cancer-free, she says that no doctors warned her that she would be susceptible to lymphedema. Hence the shock when she was diagnosed with it after that insect bite. Since then, Mungai has dealt with lymphedema in that same arm.

A similar thing happened to Michelle Shippen.

Shippen ended up having to deal with lymphedema years after she had gone through treatment for uterine cancer. She now deals with the headache and heartache that accompany lymphedema in her left leg.

“It’s a very challenging disease,” Shippen says. “It’s disfiguring and uncomfortable.”

Fortunately, there are support systems and bountiful resources set in place in Santa Cruz for people with lymphedema. Shippen has been involved with a support group through the Dominican Hospital Lymphedema Clinic. And on March 3, she and many others who deal with this disease will host a fundraiser to garner funds to provide things like compression garments for people whose insurance may not cover such items. (The timing comes just days before National Lymphedema Awareness Day, which is March 6.) All monies from the fundraiser will be poured into the Lymphedema Patient Support Fund.

A fashion show will also take place at the fundraiser/champagne luncheon. Models (actual people with lymphedema) will wear clothing options that compliment the body of someone who is dealing with lymphedema.

At press time, there were only a few tickets remaining, so the show is likely already sold out. Organizers, including Shippen, are hoping to raise $10,000.

“There are more people affected than I ever believed,” Mungai says. “[Support groups] are a good sharing mechanism to find out what new things are out there to help you.”

For more information about Dominican Hospital’s Lymphedema Clinic, call 457-7113. For more information about lymphedema, visit lymphnet.org. Pictured: Michelle Shippen.
Comments (0)Add Comment

Write comment
smaller | bigger

busy
 

Share this on your social networks

Bookmark and Share

Share this

Bookmark and Share

 

Reflecting Glass

Composer Philip Glass’ first trip to Big Sur was by motorcycle; little did he know that he’d establish a music festival there six decades later.

 

Rosh Hashanah

Rosh Hashanah, the Jewish New Year, occurs this year during Libra, the sign of creating right relations with all aspects life and with earth’s kingdoms. We contemplate (the Libra meditation) forgiveness, which means, “to give for another.” Forgiveness is not pardon. It’s a sacrifice (fire in the heart, giving from the heart). Forgiveness is giving up for the good of the other. This is the law of evolution (the path of return).

 

The New Tech Nexus

Community leaders in science and technology unite to form web-based networking program

 

Film, Times & Events: Week of September 26

Santa Cruz area movie theaters >
Sign up for Good Times weekly newsletter
Get the latest news, events

RSS Feed Burner

 Subscribe in a reader

Latest Comments

 

Wurst Case Scenario

Venus Spirits releases agave spirit, Renee Shepherd on planting garlic, Sausagefest 2014, and wine harvest in full swing

 

Do you think you are addicted to technology?

Santa Cruz  |  Unemployed

 

Best of Santa Cruz County

The 2013 Santa Cruz County Readers' Poll and Critics’ Picks It’s our biggest issue of the year, and in it, your votes—more than 6,500 of them—determined the winners of The Best of Santa Cruz County Readers’ Poll. New to the long list of local restaurants, shops and other notables that captured your interest: Best Beer Selection, Best Locally Owned Business, Best Customer Service and Best Marijuana Dispensary. In the meantime, many readers were ever so chatty online about potential new categories. Some of the suggestions that stood out: Best Teen Program and Best Web Design/Designer. But what about: Dog Park, Church, Hotel, Local Farm, Therapist (I second that!) or Sports Bar—not to be confused with Bra. Our favorite suggestion: Best Act of Kindness—one reader noted Café Gratitude and the free meals it offered to the Santa Cruz Police Department in the aftermath of recent crimes. Perhaps some of these can be woven into next year’s ballot, so stay tuned. In the meantime, enjoy the following pages and take note of our Critics’ Picks, too, beginning on page 91. A big thanks for voting—and for reading—and an even bigger congratulations to all of the winners. Enjoy.  -Greg Archer, EditorBest of Santa Cruz County Readers’ Poll INDEX

 

Apricot Wine for Dessert

Thomas Kruse Winery, a participant in the new Santa Clara Wine Trail, has been around for a long time—since 1971, to be exact. When our little group arrived to try some wine at the Kruses’ low-key tasting room, Thomas Kruse and his wife Karen were there to greet us. Theirs is a small operation, and they’re proud to offer quality wine at affordable prices. “Because we are small and low-tech, it’s easy to relate to the whole winemaking process,” says Karen—and the Kruses take pride in making wine “just like it has been made for centuries.”